Toinette accompanied me to Edji Boy. We were introduced to him via Phoebe. He was born in MMC a year ago. He have "nasofrontoethmoidal meningoencephalocoele". Yayaya, all that means that there is a hole in the front of his brain and the brain fluid is leaking out from it. It form a big sack in front of his face and then it deforms the face a lot. The head is normally also big because of all the fluid and pressure inside. At this moment he is more than one year old and is in desperate need of and operation. First they need to drain the fluid out of his brain in order to make it smaller before they can do anything else.
I talk to my friend and he say that they need to do that soon otherwise the boy will just die a slow death. So many people will think that is not worth it but let me assure you, it is. I saw some remarkable recoveries of children that was born with this disease. It is complicated but with God on our side nothing is impossible. We know a girl that had such a terrible illness and the other day at the graduation of Aprillyn I saw this young lady. God did such a good job that I did not recognise her anymore. Thanks to a mum that cares and good doctors. I could only say , Amen.
At this moment we are just seeing what we can do and need to talk to the parents in order for them to go back to the hospital. We want to ask your prayers, please. The mother is 8 months pregnant and how we will be able to do this I do not know. Ask God for some wisdom to His helpers , please.
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